全球智库信息集成服务系统

Key Findings:

• Parents were generally unfamiliar with the concept of medical homes and were not aware that the practices were so designated.
• Parents cited having a primary care provider who knew and cared about their family, had both expertise in and a willingness to learn more about their child’s special needs, respected their own knowledge and opinions, and engaged them in shared decision-making as characteristics that mattered to them.
• Parents, when discussing practices as a whole, stressed the importance of continuity in care, welcoming and well-informed care teams, care coordination support, easy access, and linkages between the practice and other community supports.
• Parent-leaders emphasized the value of PCMH models because they place children and their families at the center of care and highlighted care coordination as a key feature.
• Parent-leaders suggested expanding the reach of PCMH models into behavioral and mental health, social services, and education and expanding the roles for specialists.
• Parent-leaders recommended building parents’ awareness of the PCMH concept, engaging parents in the PCMH-recognition process, and using parent input to guide quality improvement.